Privacy Policy

By navigating the webpage https://www.medicamentos-innovadores.org/guia-unidades-fases-tempranas / (the "Online Portal") or by registering through any of the forms available to this end, the User accepts this Privacy Policy.

Who is the Data Controller in charge of my personal data?

The identification details of the Data Controller and the data protection officer are the following:

Corporate Name

Asociación Nacional Empresarial de la Industria Farmacéutica "Farmaindustria"

Registered Office

Calle María de Molina, 54, 7ª, 28006, Madrid, España

Tax Identification Number (NIF)

G-28663011

Telephone Number

915 159 350

Email

derechosdatos@farmaindustria.es

Registration Data

Register of the Directorate-General for Employment and Social Affairs, with number 582

To contact the data protection coordinator, please send an email to the following email address: derechosdatos@farmaindustria.es

What kind of data does Farmaindustria collect and how will they be used?

1. All personal information collected through the Online Portal will be incorporated into Farmaindustria’s databases and will be internally processed through the Processing Register.
2. Personal data consists of information that allows an individual to be identified. Some examples of personal data are name, email address, or telephone number. Farmaindustria only collects personal information provided by the User on a volunteer basis through our Online Portal.
3. In particular, Farmaindustria collects the following personal data of Users, provided by the Users:
   • Name, surname, telephone number, and professional email address linked to the corresponding Research Unit as provided by the User through the duly completed corresponding form.
   • User Communications: any personal data provided by the User in the course of its communications with Farmaindustria for the purpose of carrying out or resolving any contact, incidents or complaints.
4. Any personal data processed by Farmaindustria may be used for the following purposes:
• Registration in the Guide to Early Phase Research Units through submission of the corresponding form and publishing of the provided information on the Online Portal once consent has been given
• Managing the proper operation of the Online Portal and providing the User with the necessary tools for a proper user experience
• Analysing, improving and optimising use of the Online Portal
• Providing information to Users regarding activities carried out by the Spanish Technological Platform for Innovative Medicines
• Resolving complaints, incidents or inquiries through the channels made available for this purpose: email and customer service phone number
5. Should Farmaindustria further process your personal data for purposes other than those abovementioned, the User shall be previously notified of all relevant information as well as the foreseeable consequences of said processing.
6. Farmaindustria will store your personal data and may process them according to the aforementioned purposes unless the interested party requests their cancellation. Should the User unsubscribe, Farmaindustria will block the remaining data, according to the legally established security measures, for the statutory period in which any action and administrative processes that could be brought against Farmaindustria.

What is the legal basis for processing my data?

1. The legal basis for processing your data as regards registration in the Guide to Early Phase Research Units through submission of the corresponding form and publication of the information provided on the Online Portal is your express consent.
2. The legal basis for processing your personal data is in order to (i) allow a proper browsing experience on the Online Portal and (ii) resolve complaints, incidents or inquiries through the enabled channels for this purpose: email and customer service telephone number; it is Farmaindustria’s legitimate interest to provide service of the Online Portal and resolve any possible claims you file.

To whom is my data communicated?

1. Upon completion of the corresponding form and giving consent, the information published on the Online Portal will contain the main data related to the Guide to Early Phase Research Units, which may contain your personal information.
2. Your personal data will not be disclosed to third parties, except in the case of legal obligation.
3. All transfer of data will be duly carried out in accordance with applicable regulations on data protection, and particularly in accordance with Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data (“GDPR”).
4. Farmaindustria may disclose the User’s personal data to public administrations when required by law and when this information is required by such authorities in accordance with current legislation.

What are my rights as User upon providing my data?

1. At any time, you may exercise before Farmaindustria your rights to access, rectification, cancellation and opposition (ARCO), as well as the right not to be subject to decisions based solely on the automated processing of personal data and any other rights which are applicable, in the terms defined by current legislation.
2. Should the User oppose the processing of personal data, Farmaindustria will cease processing of their data, except for legitimate reasons established by current law or for exercising or defending possible legal claims.
3. Moreover, the User may exercise the following rights before Farmaindustria:
   • The right to erasure, allowing the User to request erasure of data when these are excessive, obsolete, or no longer accurate.
   • The right to data portability, allowing the User to request a copy of all of their personal data held by Farmaindustria for the purposes of migrating them to another platform of their choice.
   • The right to restrict data processing, allowing the User to (i) dispute the accuracy of their personal data, during a period which allows the Controller to verify the accuracy of the User’s data, (ii) dispute the processing of data as unlawful, and the User opposes erasure of personal data and requests the restriction of their use instead, in which case Farmaindustria shall only retain personal data relevant to the exercise or defending of legal claims.
4. Likewise, in the event consent has been given for any processing purposes, please be informed that you have the right to withdraw your consent at any time by writing to derechosdatos@farmaindustria.es. In addition, where applicable, you have the right to lodge a complaint before the Spanish Data Protection Agency.
5. For the exercise of any of the aforementioned rights, the User shall contact Farmaindustria by writing to derechosdatos@farmaindustria.es, including “Data Protection” in the title and indicating in the body of the email the specific right they wish to exercise.

Additional Information

What is Data Quality?

The User guarantees the quality of the information they provide to Farmaindustria and third parties, meaning that the data and information provided is real, accurate, up-to-date and also belongs to the User and not third parties. Therefore, by submitting their personal data to Farmaindustria, in addition to any other data they decide to publish on their account, the User guarantees and accepts responsibility for the accuracy of their data, as well as their data’s compliance with the principle of quality, to Farmaindustria and third parties.

In any case, providing false or outdated data is forbidden. The Users shall always identify themselves with their real name and accurate, current data. Farmaindustria reserves the right to verify this information at any time by requiring the User to provide an official document proving their identity.

The User shall immediately communicate any modification of their personal data to Farmaindustria in order that the information contained in data files are updated and do not contain errors.

What happens with third-party links?

This Privacy Policy refers exclusively to the Online Portal, and is not applicable to third-party hypertext links or webpages available through the Online Portal.

The linked webpages are not under Farmaindustria’s exclusive control and Farmaindustria therefore accepts no responsibility for the content of any of the destination websites of a hypertext link, any hypertext links included on webpages reached from the Online Portal, or any changes or updates of these pages. These hypertext links are provided for the sole purpose of informing the User of the existence of other sources of information on a specific topic, and the inclusion of a hypertext link does not imply the approval of the linked website by Farmaindustria. Therefore, Farmaindustria recommends that the User carefully read and review the Privacy Policy of each website they visit.

What security measures does Farmaindustria implement to guarantee the integrity of my data?

Farmaindustria takes measures to guarantee the security and confidentiality of your personal data and information. Therefore, numerous security measures and technical means have been implemented to prevent the loss, misuse or access to personal data without the User’s permission.

Notwithstanding the aforementioned, it is the User’s responsibility to control their personal information and Farmaindustria therefore requests and recommends that the User be careful with the information and content they share and with whom they share it. Farmaindustria shall not control the content and information the User decides to share with other Users and, therefore, Farmaindustria does not accept responsibility for the consequences of the User’s own actions.

Farmaindustria commits to acting swiftly and responsibility in the event that the security of the User’s data is deemed at risk, as well as inform the User where relevant and with the utmost diligence.

In the event of a security breach, Farmaindustria commits to notifying the Spanish Data Protection Agency within 72 hours from becoming aware of the breach. Likewise, were the breach to seriously infringe on the rights and freedoms of the Users, Farmaindustria shall proceed to also communicate this to the User, indicating the measures taken to mitigate the possible risks and damages.

Can the Privacy Policy be modified?

Yes. Farmaindustria reserves the right to unilaterally modify or replace this Privacy Policy. Should the User continue using the Online Portal after any such changes, this constitutes acceptance by the User of the new Privacy Policy.

Please periodically review this agreement in order to verify whether any changes have been made. Should the User not accept the provisions of the new Privacy Policy, they must immediately cease use of the Online Portal.